About Us

We are HDSA-San Diego, one of 31 chapter of the Huntington's Disease Society of America dedicated to the care of HD-affected families, support for at-risk individuals and caregivers,public advocacy, and the search for treatments and a cure of this devastating disease. Our area of service includes all of San Diego and Imperial Counties. We sponsor a monthly suppport group for affected families, raise money for the care and cure of HD, help support a Center of Excellence for Family Services, publish an annual report, maintain this website, and provide a range of other services to the HD community. We are all volunteers.

San Diego Chapter Board of Trustees

Officers

George Essig, President

Dinisa Valadao, Treasurer

Board of Directors                                                              Advisory Board

Kim Ayres                                                                         Rolf Benirschke

Luanne Bas                                                                       Steve Carrizosa

Lisa Belott                                                                        Pat Connors

Jeff Bolitho                                                                       Jill Faucher

Nick Canepa                                                                     Ron Fowler

La Vonne Cashman                                                           Ann & Ben Haddad

Bill Johnston                                                                    Peggy Johnson

Hayley Johnson                                                               Cheryl Kendrick

Rob Millum                                                                      Randy Nakagawa

Misty Oto                                                                        Drew Schlosberg

Nan Pace                                                                        Sharon Shaffer

Mark Sheller                                                                   Susie & Dean Spanos

Jim Stone                                                                       John Still

Lindsey Zan                                                                    Ed Trimble

HDSA San Diego Regional Office

Please Contact:

Stephanie Alband, MSBA

Pacific Southwest Regional Coordinator

Huntington's Disease Society of America

P.O. Box 19524

San Diego, CA 92159-0524

Tel.: 619-225-2255

Fax: 619-225-2277

E-mail: salband@hdsa.org

HD Family Consultant

Lisa Snyder

Tel., 858-622-5814

Medical Advisor

Jody Corey-Bloom, M.D., Ph.D.

HDSA Center of Excellence for Family Servies and Research, University of California, San Diego

9500 Gilman Drive

La Jolla, CA 92093-0948

Tel.: 858-622-5854