About Us

We are HDSA-San Diego, one of 31 chapters of the Huntington's Disease Society of America dedicated to the care of HD-affected families, support for at-risk individuals and caregivers, public advocacy, and the search for treatments and a cure of this devastating disease. Our area of service includes all of San Diego and Imperial Counties. We sponsor a monthly support group for affected families, raise money for the care and cure of HD, help support a Center of Excellence for Family Services, publish an annual report, maintain this website, and provide a range of other services to the HD community. We are all volunteers.

San Diego Chapter Board of Trustees

Officers
Luanne Bas, President
Dinisa Valadao, Treasurer
Nan Pace, Secretary

Members at Large
Kim Ayres
Jeff Bolitho
LaVonne Cashman
Sally Cravens
George Essig
Gustavo Friederichsen
Bill Johnston
Rob Millum
Misty Oto
Allan Rappoport
Steve Redfearn
Sally Cravens

 Advisory Board
Rolf Benirschke
Steve Carrizosa
Pat Connors
Jill Faucher
Ron Fowler
Ann & Ben Haddad
Cheryl Kendrick
Peggy Johnson
Randy Nakagawa
Drew Schlosberg
Box Sexton
Sharon Shaffer
Susie & Dean Spanos
John Still
Ed Trimble
Warren Young, Ph.D.

HDSA San Diego Regional Office

Please contact:
Stephanie Alband, Special Events Coordinator
Huntington's Disease Society of America
P.O. Box 19524
San Diego, CA 92159-0524
Tel.: 619-225-2255
E-mail by clicking here.

Natalie Carpenter, Regional Development Director
Southern California Region
Huntington's Disease Society of America
P.O. Box 6334
Irvine, CA 92616
Tel.: 949-542-3907
Fax: 949-542-3976
E-mail by clicking here.

Medical Advisor

Jody Corey-Bloom, M.D., Ph.D.
HDSA Center of Excellence for Family Services and Research
University of California, San Diego
9500 Gilman Drive (0948)
La Jolla, CA 92093-0948
Tel.: 858-622-5854