Thursday, July 23, 2009
If we won't help ourselves, why should anybody else care?
| Tags: Huntington's disease, symptoms, genetic defect, mother, brain, cells, Robi Blumenstein, CHDI, drug, gene-positive, denial, HD, activism, activist, treatment, drug pipeline, families, drug discovery, anonymous, MRI, smell, motor skills, time bomb, family, at-risk, testing, test, attitude, neurologist, clinic, HDSA, Center of Excellence, trial, Jim Calhoun, Lessons from the Ancients, fundraising, advocacy, House Bill 678, Huntington's Disease Advocacy Center
Wednesday, July 15, 2009
Everybody can help with vital Huntington's research.
| Tags: Huntington's disease, Huntington's, genetic, tested positive, brain, symptoms, suicie, activist, HDSA-San Diego, HDSA, experiments, clinical trials, scientists, guinea pig, gene-positive, at-risk, affected, drugs, Martha Nance, LaVonne Goodman, Huntington's Disease Drug Works, HDDW, mother, defect, MRI, National Research Roster, trehalose, coenzyme Q-10, omega, fish oil, blueberry, creatine, neuropsychological, cocktail, motor control, stability, A Beautiful Mind, balance, asymptomatic, treatments, Center of Excellence
Wednesday, July 8, 2009
Will I take an Isis drug? Or will I be doomed to end up like my HD-stricken mom?
| Tags: Isis Pharmaceuticals, Huntington's, California, mother, symptoms, wheelchair, laser-guided missile, CHDI Foundation, testing, research, drugs, fight, neurological, humanity, Isis
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