Thursday, August 27, 2009
What would my life be like without HD?
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| Tags: mother, father, Huntington's disease, Huntington's, HD, struggle, dementia, immobility, feeding tube, child, daughter, wife, granddaughter, symptoms
Thursday, August 20, 2009
"I felt emotionally paralyzed."
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| Tags: Huntington's disease, AIDS, cancer, gene-positive, closet, experiment, mother, denial, wife, daughter, blog, privacy, coming out, going public, HD, sympathy, death, ritual, anonymity, orphan disease, discrimination, genetic testing, CHDI, Clinton, Genome, Guthrie, House, at-risk, symptoms
Sunday, August 2, 2009
I have a chance to play a part in the historic effort to halt HD.
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| Tags: huntingtin, Huntington's disease, genetic, tested positive, mother, daughter, symptoms, depression, mood swings, negative, wheelchair, defect, blessing, onset, modifier gene, diet, exercise, stress, psychotherapy, supplements, Huntington's Disease Drug Works, HDSA, trehalose, coenzyme Q-10, omega-3, blueberry, creatine, love, activism, blog, morale, support group, leadership, stem-cell, advocacy, disease
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