Sunday, October 25, 2009
We can't just feel hope. We need to live hope.
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| Tags: Huntington's disease, Huntington's, tested positive, gene-positive, father, mother, daughter, at risk, hope, treatments, cure, symptoms, Isis, Isis Pharmaceuticals, CHDI, genetic mirror, Martha Nance, Jody Corey-Bloom, HDSA-San Diego, HDSA, Chargers, Race Across America, Center of Excellence, Obama
Tuesday, October 13, 2009
Suddenly it hit me: I have become a very different person because of my gene-positive status.
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| Tags: Huntington's disease, Huntington's, gene-positive, tested positive, HDSA-San Diego, daughter, mother, father, wife, symptoms, fundraising, stem-cell, research, BDNF, patient, success, disease, advocacy, cure
Saturday, October 3, 2009
As I lay in an MRI machine, news came of the death of my father, the HD warrior.
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| Tags: MRI, Huntington's, Huntington's disease, mother, father, denial, gene-positive, outburst, California, relationship, brother, sister, compassion, cure, treatment, CHDI, symptoms, chorea, psychology, UCSD, COHORT, Parkinson's, brain
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