Thursday, January 14, 2010
After turning 50, I feel a new urgency about stopping HD.
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| Tags: gene-positive, Huntington's, symptoms, HDSA-San Diego, Isis Pharmaceuticals, mother, sister, Alice Wexler, daughter, Hereditary Disease Foundation, father, God, faith, science, advocacy
Monday, May 25, 2009
Many hide from HD's horrors, but we all need to speak out.
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| Tags: Huntington's, Huntington's disease, cure, cope, symptoms, tested positive, horror, time bomb, Phebe Hedges, Alice Wexler, instinct, stigma, denial, discrimination, depressed, mother, father, decline, suicide, nursing home, activism, public, at-risk status, HD, support group, HDSA, HDSA-San Diego, fundraising
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