Friday, December 21, 2012
I'm lucky to have good health.
| Tags: mother, diagnosis, Huntington's, tested positive, love, God, heatlh, asymptomatic, onset, advocate, treatment, closet, Brazil, HD warrior, faith, Catholic, Jesus, family, wife, daughter, anxiety
Saturday, December 8, 2012
Lots of people are in my corner.
| Tags: HD closet, advocacy, advocate, Huntington's, wife, daughter, mother, symptoms, neurological, health, University of San Diego, testing, tested positive, Parkinson's, Lewy body disease, at-risk, awareness, leader, hope, Brazil, Isis, genetic, stigma, research, brain, gene-positive
Tuesday, August 21, 2012
Throwing long, gaining perspective.
| Tags: Huntington's, mother, symptoms, onset, brain, chorea, activist, advocacy, awareness, genetic, discrimination, HD closet, Alice Wexler, orphan, Lou Gehrig's, neurological, caregiving, healthcare, California, daughter, stem-cell, Social Security, Center of Excellence, Brazil, activism, psychiatric, stress, science, father, biotechnological, mind, drug
Monday, June 11, 2012
Our organization's meaning: Hope, Determination, Solidarity, Awareness.
| Tags: Huntington's, Brazil, Person of the Year, symptoms, mother, daughter, sister, HD closet, suicide, onset, gene-positive, Guthrie, Social Security, juvenile HD, Louise Vetter, HD Parity Act, mutation, genetic, tested positive, discrimination, awareness, advocacy, solidarity, neurodegenerative
Tuesday, June 21, 2011
It's time to brainstorm on improving our cause.
| Tags: Huntington's, mother, wife, daughter, gene-positive, research, Brazil, scientist, cure, treatment, Alnylam, symptoms, onset, caregiving, solidarity
Friday, December 24, 2010
I remained symptom-free in 2010.
| Tags: Huntington's, clinic, tested positive, mother, symptoms, depression, mood, chorea, Center of Excellence, cognitive, test, testing, gene-positive, death, Huntington's Disease Drug Works, trehalose, coenzyme Q-10, omega-3, blueberry, creatine, Brazil, anxiety, faith, spirituality, psychotherapy, hope, at-risk, diagnosis, genetic, genetic testing
Thursday, December 16, 2010
I will keynote the HD Super Bowl on February 7.
| Tags: Huntington's, cure, CHDI, Robi Blumenstein, dementia, cognitive, gene-positive, symptoms, mother, Charles Sabine, closet, Brazil, diagnosis, death, advocate, support group
Friday, December 3, 2010
'Enroll-HD' aims to speed up research.
| Tags: Huntington's, mother, at-risk, Enroll-HD, CHDI, gene-positive, HD-positive, Brazil, Associação Brasil Huntington, Nancy Wexler, Alice Wexler, Latin America, Venezuela, Maracaibo, clinical trial, cure, treatment, guinea pig, neurological, genetic, gene
Saturday, September 25, 2010
I took my biggest step ever in revealing my gene-positive status.
| Tags: Vertex, Brazil, gene-positive, family, mother, father, wife, daughter, insurance, Huntington's, CHDI, warrior, symptoms, genetic, geneticist, tested negative, tested positive, Terry Leach, juvenile HD, HDSA-San Diego, Obama, brain, Isis
Saturday, September 18, 2010
Living gene-positive for HD has made me a better person.
| Tags: gene-positive, Huntington's, symptoms, mother, father, daughter, denial, at-risk, warrior, Brazil, HDSA, research, fundraising, support, death, faith, love
Monday, June 14, 2010
I'll learn as I go.
| Tags: gene-positive, Huntington's, disease, diagnosis, mother, wife, daughter, at-risk, Brazil, God, going public, closet, going public, MRI, Isis Pharmaceuticals, oligonucleotide, Associação Brasil Huntington, Teilhard, coming out, discrimination
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