Tuesday, August 21, 2012
Throwing long, gaining perspective.
| Tags: Huntington's, mother, symptoms, onset, brain, chorea, activist, advocacy, awareness, genetic, discrimination, HD closet, Alice Wexler, orphan, Lou Gehrig's, neurological, caregiving, healthcare, California, daughter, stem-cell, Social Security, Center of Excellence, Brazil, activism, psychiatric, stress, science, father, biotechnological, mind, drug
Thursday, February 9, 2012
How do we convince relatives to join the cause?
| Tags: denial, stigma, clinical trial, treatments, cure, mother, father, daughter, wife, sister, HD closet, genetic, discrimination, gene-positive, symptoms, blog, CHDI, activism, activist, HDSA Person of the Year, testing, tested positive, tested negative, supplements, California, nursing home, observational study, advocate, advocacy, Huntington's
Monday, January 23, 2012
Scientists receive millions for the search for treatments.
| Tags: California, CIRM, stem-cell, stem cell, research, advocate, advocacy, treatments, cure, Obama, Alzheimer's, Huntington's, activist, Jan Nolta, Leslie Thompson, clinical trial, genetic, gene, BDNF, mesenchymal stem cell, brain, PGD, medium spiny neuron, symptoms
Wednesday, May 11, 2011
It's time to conquer HD!
| Tags: Huntington's, Hereditary Disease Foundation, Huntington's Disease Drug Works, CHDI, cure, symptoms, mother, daughter, wife, father, solidarity, diagnosis, gene-positive, HD Buzz, HDDW, LaVonne Goodman, genetic, brain, stem cell, Jan Nolta, California, Alzheimer's, Parkinson's, Lou Gehrig's, mesenchymal stem cell, neuron, RNA, Isis, Alnylam, Institute for Regenerative Cures, Lundbeck, Xenazine, tetrabenazine, FDA, chorea, PGD, at-risk, tested negative, psychiatric, behavioral, depression, psychotic, caregiver, caregiving, medication, cope, huntingtin, gene, protein, huntingtin suppression, advocacy, activism
Wednesday, May 5, 2010
Our movement stands at a crossroads.
| Tags: HDSA, care, cure, research, treatment, mother, tested positive, father, exercise, symptoms, diagnosis, Center of Excellence, California, CHDI, Spanish, Care2Cure, advocacy, Huntington's, disease
Saturday, October 3, 2009
As I lay in an MRI machine, news came of the death of my father, the HD warrior.
| Tags: MRI, Huntington's, Huntington's disease, mother, father, denial, gene-positive, outburst, California, relationship, brother, sister, compassion, cure, treatment, CHDI, symptoms, chorea, psychology, UCSD, COHORT, Parkinson's, brain
Wednesday, July 8, 2009
Will I take an Isis drug? Or will I be doomed to end up like my HD-stricken mom?
| Tags: Isis Pharmaceuticals, Huntington's, California, mother, symptoms, wheelchair, laser-guided missile, CHDI Foundation, testing, research, drugs, fight, neurological, humanity, Isis
Saturday, May 16, 2009
Huntington's takes on new meanings as I strive to live life to the fullest.
| Tags: Huntington's, Huntington's disease, symptoms, brain, disease, grief, hurtling towards death, workaholic, Isaac Asimov, daughter, relationship, urgency, activism, HDSA, newsletter, advocates, California, stem-cell oversight, website, father, Huntington's warrior, accident, cancer, psychotherapist, juggling, fantasize, wheelchair, relaxing, legacy
Sunday, April 5, 2009
It may sound crazy, but we're borrowing money to build a pool.
| Tags: economic crisis, financial crisis, Huntington's disease, mortality, California, gene positive, swimming, health, denial, genetic testing, marriage, daughter, mother, therapeutic, lessons, togetherness
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