Wednesday, May 5, 2010
Our movement stands at a crossroads.
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| Tags: HDSA, care, cure, research, treatment, mother, tested positive, father, exercise, symptoms, diagnosis, Center of Excellence, California, CHDI, Spanish, Care2Cure, advocacy, Huntington's, disease
Saturday, April 17, 2010
How do you leave the closet about a disease that will deeply alter people's perceptions of your abilities?
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| Tags: Huntington's disease, gene-positive, closet, mother, symptoms, discrimination, daughter, wife, Yale, test, coming out, Giamatti, cure, activism, tested negative, testing, genetic testing, genetic, HDSA-San Diego, advocacy, psychotherapist, freedom, Edgemoor, wheelchair, at-risk, at risk, Race Across America, H.R. 678
Thursday, January 14, 2010
After turning 50, I feel a new urgency about stopping HD.
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| Tags: gene-positive, Huntington's, symptoms, HDSA-San Diego, Isis Pharmaceuticals, mother, sister, Alice Wexler, daughter, Hereditary Disease Foundation, father, God, faith, science, advocacy
Tuesday, October 13, 2009
Suddenly it hit me: I have become a very different person because of my gene-positive status.
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| Tags: Huntington's disease, Huntington's, gene-positive, tested positive, HDSA-San Diego, daughter, mother, father, wife, symptoms, fundraising, stem-cell, research, BDNF, patient, success, disease, advocacy, cure
Sunday, August 2, 2009
I have a chance to play a part in the historic effort to halt HD.
Comments (1)
| Tags: huntingtin, Huntington's disease, genetic, tested positive, mother, daughter, symptoms, depression, mood swings, negative, wheelchair, defect, blessing, onset, modifier gene, diet, exercise, stress, psychotherapy, supplements, Huntington's Disease Drug Works, HDSA, trehalose, coenzyme Q-10, omega-3, blueberry, creatine, love, activism, blog, morale, support group, leadership, stem-cell, advocacy, disease
Thursday, July 23, 2009
If we won't help ourselves, why should anybody else care?
Comments (3)
| Tags: Huntington's disease, symptoms, genetic defect, mother, brain, cells, Robi Blumenstein, CHDI, drug, gene-positive, denial, HD, activism, activist, treatment, drug pipeline, families, drug discovery, anonymous, MRI, smell, motor skills, time bomb, family, at-risk, testing, test, attitude, neurologist, clinic, HDSA, Center of Excellence, trial, Jim Calhoun, Lessons from the Ancients, fundraising, advocacy, House Bill 678, Huntington's Disease Advocacy Center
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