Tuesday, August 31, 2010
Swimming helps me cope with living at risk.
Comments (2)
| Tags: Fastlane, Huntington's, gene-positive, at risk, mother, symptoms, daughter, wife, exercise, HDSA, Huntington's Disease Drug Works, LaVonne Goodman, Obama, swim, swimming, brain
Monday, June 7, 2010
Our cause fuels the great movement for human progress.
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| Tags: treatment, cure, Huntington's, disease, God, gene-positive, faith, theology, Catholicism, science, evolution, Teilhard, Darwin, Catholic, research, noosphere, evil, suffering, juvenile Huntington's, genetic, Edgemoor, father, mother, daughter, wife, activism, activist, HDSA, brain, social justice, Bible, Jesuit, Francis Collins, polyglutamine, cancer, gene, oligonucleotide, antisense, technology, abortion, health care, discrimination, cross, Christ, humanity, mutation, resurrection, spirit, spiritual, spirituality, consciousness, conscious, meaning, nervous, energy, psychotherapy, therapy, psychotherapist, psychoanalyst, psychiatrist, escapism, denial, mind coach, mind, huntingtin, soul, reflection, collective, knowledge, love, Christianity, Christian, religion, mysticism, lab, eugenics, tested positive, test, genetic testing, PGD, healthy, CHDI, Isis Pharmaceuticals, gene-positive
Thursday, May 20, 2010
Even while facing HD, Steve and Gayle enjoyed every minute together.
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| Tags: Huntington's, disease, death, gene-positive, premanifest, brain, caregiver, love, juvenile Huntington's, mother, father, son, daughter, warrior, feeding tube, San Diego, Chargers, wife, support, support group, HDSA-San Diego, HDDW, LaVonne Goodman, at-risk, exercise, symptoms, death
Thursday, April 29, 2010
Spread the word about HD Awareness Month and the dream of a disease-free world.
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| Tags: fear, AIDS, Parkinson's, awareness, cure, brain, at risk, genetic, huntingtin, gene, discrimination, insurance, disability, Genome, genomic, code, treatment, genetic testing, biotechnology, protein, Isis Pharmaceuticals, Lou Gehrig's, Alzheimer's, stroke, orphan
Wednesday, March 3, 2010
It's not just hope: there's practical planning for making the medicines.
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| Tags: CHDI, Huntington's, gene, clinical trial, gene-positive, clinic, premanifest, oligonucleotides, RNA interference, Lou Gehrig's, mitochondria, brain, motor, cognitive, psychiatric, metabolic, dysfunction, FDA, symptoms, MRI, TRACK-HD, death, UHDRS, biomarker, trial, side effect, drug, huntingtin, finger-tapping, tongue, HD-affected, Phase III
Wednesday, November 25, 2009
Each moment is unique and will not return.
Comments (0)
| Tags: Huntington's, daughter, gene-positive, brain, disease, genetic test, pregnancy, abortion, mother
Sunday, November 15, 2009
How do I face the fact that HD will likely strike me?
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| Tags: brain, disease, Huntington's, fear, symptoms, psychotherapist, drugs, anxiety, depression, Thich Nhat Hanh, mind coach, therapist, spirituality, spiritual, daughter, mother, wife
Saturday, October 3, 2009
As I lay in an MRI machine, news came of the death of my father, the HD warrior.
Comments (0)
| Tags: MRI, Huntington's, Huntington's disease, mother, father, denial, gene-positive, outburst, California, relationship, brother, sister, compassion, cure, treatment, CHDI, symptoms, chorea, psychology, UCSD, COHORT, Parkinson's, brain
Wednesday, September 23, 2009
In the fight against HD, we know how much we depend on our supporters.
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| Tags: brain, disorder, Huntington's, disease, mother, daughter, at risk, symptoms, HDSA, supporters, solidarity, stigma, advocate, stem cell, disability, treatment, cure
Thursday, July 23, 2009
If we won't help ourselves, why should anybody else care?
Comments (3)
| Tags: Huntington's disease, symptoms, genetic defect, mother, brain, cells, Robi Blumenstein, CHDI, drug, gene-positive, denial, HD, activism, activist, treatment, drug pipeline, families, drug discovery, anonymous, MRI, smell, motor skills, time bomb, family, at-risk, testing, test, attitude, neurologist, clinic, HDSA, Center of Excellence, trial, Jim Calhoun, Lessons from the Ancients, fundraising, advocacy, House Bill 678, Huntington's Disease Advocacy Center
Wednesday, July 15, 2009
Everybody can help with vital Huntington's research.
Comments (1)
| Tags: Huntington's disease, Huntington's, genetic, tested positive, brain, symptoms, suicie, activist, HDSA-San Diego, HDSA, experiments, clinical trials, scientists, guinea pig, gene-positive, at-risk, affected, drugs, Martha Nance, LaVonne Goodman, Huntington's Disease Drug Works, HDDW, mother, defect, MRI, National Research Roster, trehalose, coenzyme Q-10, omega, fish oil, blueberry, creatine, neuropsychological, cocktail, motor control, stability, A Beautiful Mind, balance, asymptomatic, treatments, Center of Excellence
Wednesday, June 24, 2009
We now have a fighting chance to stop HD in our lifetimes.
Comments (1)
| Tags: gene positive, Huntington's, ignorance, denial, symptoms, cure, research, huntingtin, protein, gene, brain, cells, neuroscientists, psychologists, MRI, Rhes, striatum, Johns Hopkins University, Scripps Research Institute, Isis Pharmaceuticals, CalAsia Pharmaceuticals, Huntington's Disease Drug Works, Differential Fragment-Based Screening, DFS, mother, defective, test, activist, HDSA, generation, nation
Saturday, May 16, 2009
Huntington's takes on new meanings as I strive to live life to the fullest.
Comments (0)
| Tags: Huntington's, Huntington's disease, symptoms, brain, disease, grief, hurtling towards death, workaholic, Isaac Asimov, daughter, relationship, urgency, activism, HDSA, newsletter, advocates, California, stem-cell oversight, website, father, Huntington's warrior, accident, cancer, psychotherapist, juggling, fantasize, wheelchair, relaxing, legacy
Sunday, April 26, 2009
After fighting for his wife, this dedicated caregiver is now ill and all alone.
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| Tags: Huntington's disease, HD, warrior, caregiver, cure, mother, father, symptoms, tested positive, cognitive decline, memory, genetic defect, dehydrated, rehabilitation facility, care facility, stroke, transitions, ravaged, brain, cycle of life, battles
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