Friday, December 21, 2012
I'm lucky to have good health.
| Tags: mother, diagnosis, Huntington's, tested positive, love, God, heatlh, asymptomatic, onset, advocate, treatment, closet, Brazil, HD warrior, faith, Catholic, Jesus, family, wife, daughter, anxiety
Sunday, January 8, 2012
It's time to stop feeling timid!
| Tags: blog, Huntington's, mortality, genetic, discrimination, mother, death, HD warrior, father, daughter, wife, genetic test, onset, symptoms, activist, science, Alnylam, research, stigma, treatments, cure, HD closet, CHDI, Catholic, spiritual, faith, brain, gene-positive, anxiety, clinical trial, HDSA Person of the Year, advocacy, suicide, abortion, genetic testing, pregnancy, testing, test, Huntington's Disease Drug Works, LaVonne Goodman, denial, neurological, asymptomatic, caregiver
Sunday, December 18, 2011
A young woman prepares for the worst and prays for the best.
| Tags: Huntington's, abortion, juvenile Huntington's, juvenile HD, gene-positive, son, daughter, mother, father, blog, love, wife, tested positive, tested negative, HD-free, suicide, mercy killing, assisted suicide, nursing home, symptoms, untested, at-risk, testing, genetic testing, geneticist, negative, gene, chorea, test, CAG repeats, grandfather, huntingtin, memory, caregiving, wheelchair, Medicare, Medicaid, disabled, sterilize, sterilization, technology, awareness, cure, treatments, Catholic, stress, struggle
Monday, June 7, 2010
Our cause fuels the great movement for human progress.
| Tags: treatment, cure, Huntington's, disease, God, gene-positive, faith, theology, Catholicism, science, evolution, Teilhard, Darwin, Catholic, research, noosphere, evil, suffering, juvenile Huntington's, genetic, Edgemoor, father, mother, daughter, wife, activism, activist, HDSA, brain, social justice, Bible, Jesuit, Francis Collins, polyglutamine, cancer, gene, oligonucleotide, antisense, technology, abortion, health care, discrimination, cross, Christ, humanity, mutation, resurrection, spirit, spiritual, spirituality, consciousness, conscious, meaning, nervous, energy, psychotherapy, therapy, psychotherapist, psychoanalyst, psychiatrist, escapism, denial, mind coach, mind, huntingtin, soul, reflection, collective, knowledge, love, Christianity, Christian, religion, mysticism, lab, eugenics, tested positive, test, genetic testing, PGD, healthy, CHDI, Isis Pharmaceuticals, gene-positive
Sunday, April 12, 2009
It's time to renew our fight against this devilish disease.
| Tags: huntington's, catholic, israelite, passover, easter, CAG repeats, trinucleotide, faith, persevere, belief, God, Jesus, Egypt, cure, treatments, forsaken, caregiver, Holy Week, WeAreHD.org, Good Friday, Bible, Promised Land, Christ, Resurrection, religious traditions, families
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