Tuesday, January 17, 2012
HD claims lives of two more children.
| Tags: Huntington's, treatments, cure, juvenile HD, juvenile Huntington's, research, onset, mother, daughter, wife, symptoms, seizure, death, father, gene-negative, gene, genetic, Johns Hopkins University, CAG repeats, testing, genetic testing, Social Security, feeding tube, nursing home, stem cell, cells, tested positive
Thursday, July 23, 2009
If we won't help ourselves, why should anybody else care?
| Tags: Huntington's disease, symptoms, genetic defect, mother, brain, cells, Robi Blumenstein, CHDI, drug, gene-positive, denial, HD, activism, activist, treatment, drug pipeline, families, drug discovery, anonymous, MRI, smell, motor skills, time bomb, family, at-risk, testing, test, attitude, neurologist, clinic, HDSA, Center of Excellence, trial, Jim Calhoun, Lessons from the Ancients, fundraising, advocacy, House Bill 678, Huntington's Disease Advocacy Center
Wednesday, June 24, 2009
We now have a fighting chance to stop HD in our lifetimes.
| Tags: gene positive, Huntington's, ignorance, denial, symptoms, cure, research, huntingtin, protein, gene, brain, cells, neuroscientists, psychologists, MRI, Rhes, striatum, Johns Hopkins University, Scripps Research Institute, Isis Pharmaceuticals, CalAsia Pharmaceuticals, Huntington's Disease Drug Works, Differential Fragment-Based Screening, DFS, mother, defective, test, activist, HDSA, generation, nation
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