Thursday, May 17, 2012
But much work remains to be done.
| Tags: advocacy, advocate, juvenile Huntington's, Social Security, Huntington's, Louise Vetter, Parity Act, genetic test, diagnosis, disability, Center of Excellence, Martha Nance, chorea, cognitive, behavioral, dementia
Thursday, March 8, 2012
Spreading the message about progress is crucial.
| Tags: genetic, Huntington's, hope, mother, symptoms, gene-positive, testing positive, treatments, cure, CHDI, clinical trials, symptomatic, Alnylam, Isis, Medtronic, Pfizer, Novartis, Vertex, Robert Pacifici, Jim Gusella, genetic test, gene, huntingtin, oligonucleotide, Michael Hayden, brain, onset, gene silencing, Yale, stem cell, chorea, cognitive, mood, research, premanifest, scientist, advocate, neuron
Thursday, July 28, 2011
We must all chip in to help find treatments.
| Tags: Huntington's, scientist, gene, Charles Sabine, clinical trial, gene-positive, symptoms, symptomatic, at-risk, CHDI, trial, untested, denial, sister, daughter, activism, activist, love, researcher, FDA, drug, motor, cognitive, psychiatric, brain, cocktail, Xenazine, tetrabenazine, Lundbeck, Alnylam, RNA interference, asymptomatic, presymptomatic, mother, Enroll-HD
Wednesday, May 25, 2011
Alnylam plans to apply for a clinical trial in 2012.
| Tags: Huntington's, Alnylam, ALN-HTT, cure, treatment, mother, brain, genetic, symptoms, CHDI, Medtronic, clinical trial, huntingtin, siRNA, RNAi, gene silencing, Genome Project, gene-positive, biotech, Parkinson's, Dinah Sah, Isis, cocktail, cognitive, Phase I, Phase II, Phase III, Teilhard, daughter, Louise Vetter, pump, FDA
Wednesday, April 13, 2011
We need aggressive advocacy to pass disability bill.
| Tags: Huntington's, disability, Parity Act, advocacy, advocate, chorea, cognitive, mother, awareness, Lou Gehrig's
Friday, December 24, 2010
I remained symptom-free in 2010.
| Tags: Huntington's, clinic, tested positive, mother, symptoms, depression, mood, chorea, Center of Excellence, cognitive, test, testing, gene-positive, death, Huntington's Disease Drug Works, trehalose, coenzyme Q-10, omega-3, blueberry, creatine, Brazil, anxiety, faith, spirituality, psychotherapy, hope, at-risk, diagnosis, genetic, genetic testing
Thursday, December 16, 2010
I will keynote the HD Super Bowl on February 7.
| Tags: Huntington's, cure, CHDI, Robi Blumenstein, dementia, cognitive, gene-positive, symptoms, mother, Charles Sabine, closet, Brazil, diagnosis, death, advocate, support group
Wednesday, March 3, 2010
It's not just hope: there's practical planning for making the medicines.
| Tags: CHDI, Huntington's, gene, clinical trial, gene-positive, clinic, premanifest, oligonucleotides, RNA interference, Lou Gehrig's, mitochondria, brain, motor, cognitive, psychiatric, metabolic, dysfunction, FDA, symptoms, MRI, TRACK-HD, death, UHDRS, biomarker, trial, side effect, drug, huntingtin, finger-tapping, tongue, HD-affected, Phase III
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