Sunday, November 4, 2012
A tremendous burden off my shoulders.
| Tags: Huntington's closet, genetic, genetic clock, science, advocacy, brain, mother, gene, awareness, research, treatments, symptoms, onset, stigma, discrimination, coming out, neurologist, asymptomatic, wife, disabled, Huntington's
Thursday, February 16, 2012
Practical strategies for getting people involved.
| Tags: Huntington's, denial, symptoms, stigma, research, LaVonne Goodman, Louise Vetter, Huntington's Disease Drug Works, clinical trial, discrimination, diagnosis, support group, advocacy, doctor, Center of Excellence, genetic, caregiving, genetic testing, psychologist, neurologist, genetic counseling, treatment, juvenile HD, testing, awareness, cure
Saturday, April 2, 2011
It's time to remove our masks.
| Tags: Huntington's, orphan disease, genetic defect, genetic, brain, death, stigma, ignorance, discrimination, denial, fear, faceless, neurological, cure, treatments, symptoms, advocacy, awareness, neurologist, diagnosis, closet, gene-positive, at-risk, at risk, CHDI
Thursday, July 23, 2009
If we won't help ourselves, why should anybody else care?
| Tags: Huntington's disease, symptoms, genetic defect, mother, brain, cells, Robi Blumenstein, CHDI, drug, gene-positive, denial, HD, activism, activist, treatment, drug pipeline, families, drug discovery, anonymous, MRI, smell, motor skills, time bomb, family, at-risk, testing, test, attitude, neurologist, clinic, HDSA, Center of Excellence, trial, Jim Calhoun, Lessons from the Ancients, fundraising, advocacy, House Bill 678, Huntington's Disease Advocacy Center
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