Wednesday, November 28, 2012
Grants will focus on HD in humans.
| Tags: Huntington's, treatments, Louise Vetter, scientist, research, neuroscientist, care, CHDI, Hereditary Disease Foundation, biology, clinical trial, Center of Excellence, biomarker, fundraising, stem cell, Alzheimer's, systems biology, grassroots, Robi Blumenstein, patient
Sunday, October 21, 2012
Condition will be treatable.
| Tags: Huntington's disease, clinical trials, stigma, denial, research, Isis Pharmaceuticals, treatments, genetic testing, hope, scientist, asymptomatic, gene, spiritual, insurance, cross
Monday, September 3, 2012
Raising awareness, saving the babies.
| Tags: Terry Leach, Huntington's, at risk, juvenile HD, scientist, treatments, cure, feeding tube, wheelchair, research, awareness, genetic testing, PGD, pregnancy, mother, father, son, genetic counseling
Friday, August 3, 2012
Testing could start in two years.
| Tags: stem cell, mesenchymal stem cell, brain, Huntington's, testing, CIRM, Jan Nolta, symptomatic, clinical, BDNF, gene therapy, cellular therapy, neuron, symptoms, Alzheimer's, Parkinson's, therapy, FDA, psychiatric, Bush, embryonic stem cells, induced pluripotent stem cell, AIDS, therapies, advocate, advocacy, activist, Judy Roberson, striatum, RNA interference, siRNA, antisense, huntingtin, drug, neurodegenerative, pharmaceutical, cocktail, hope, mother, scientist, CHDI, treatment
Monday, June 4, 2012
Scientists pursue 'Viagra for brain' and other solutions.
| Tags: Huntington's, Yale, Martha Nance, LaVonne Goodman, positive genetic test, activist, coming out, stigma, discrimination, closet, CHDI, treatments, cure, daughter, mother, symptoms, leadership, activism, scientist, brain, drug, creatine, coming out, supplements, HDDW, Huntington's Disease Drug Works, clinical trial, cognition, memory, psychiatric, BDNF, drug hunter, Pfizer, Alzheimer's, PDE inhibitor, gene-positive, symptomatic, depression, genetic testing, genetic, cocktail, gene, Parkinson's, orphan
Tuesday, March 20, 2012
We are turning the tide from 'incurable to 'treatable.'
| Tags: mother, Huntington's, treatment, cure, dementia, fatal, positive test, symptoms, side effect, therapy, researcher, clinical trial, therapies, hope, incurable, treatable, denial, scientist, supplement, RNA interference, brain, Robert Pacifici, CHDI, genome, DNA, protein, biotech, systems biology, P4 medicine, neurodegenerative, modifier gene, gene, huntingtin, mutation, genetic, patient
Thursday, March 8, 2012
Spreading the message about progress is crucial.
| Tags: genetic, Huntington's, hope, mother, symptoms, gene-positive, testing positive, treatments, cure, CHDI, clinical trials, symptomatic, Alnylam, Isis, Medtronic, Pfizer, Novartis, Vertex, Robert Pacifici, Jim Gusella, genetic test, gene, huntingtin, oligonucleotide, Michael Hayden, brain, onset, gene silencing, Yale, stem cell, chorea, cognitive, mood, research, premanifest, scientist, advocate, neuron
Thursday, March 1, 2012
Researchers producing many 'shots on goal.'
| Tags: Huntington's, cure, treatments, research, researcher, scientist, Robert Pacifici, brain, CHDI, biotech, clinical trial
Tuesday, February 21, 2012
The strategic plan is open for comment.
| Tags: care, cure, grassroots, advocate, Louise Vetter, therapeutic, HDSA Person of the Year, research, scientist, CHDI, Hereditary Disease Foundation, advocacy, treatment, cure, biotechnology, brain, Center of Excellence, clinic, awareness, clinical trial, counseling, patient, nursing home, Guthrie
Sunday, December 11, 2011
Timothy's brain was donated for research.
| Tags: Huntington's, brain, gene, abortion, mother, research, husband, wife, daughter, son, tested positive, gene-positive, activist, tested negative, pregnancy, juvenile Huntington's, symptoms, love, PGD, CAG repeats, geneticist, onset, protein, DNA, cure, treatments, Alzheimer's, Parkinson's, science, scientist, HD closet, closet, genetic, solidarity
Wednesday, November 30, 2011
Scientists aren't ready to include me.
| Tags: genetic test, Huntington's, onset, brain, clinical trial, treatment, caregiver, asymptomatic, pre-manifest, gene-positive, symptomatic, tested negative, mother, symptoms, cure, gene, coenzyme Q-10, Enroll-HD, PREDICT-HD, COHORT, CHDI, Huntington's Disease Drug Works, dementia, Isis, Alnylam, genetic, Alzheimer's, Robi Blumenstein, at risk, FDA, research, researcher, scientist
Monday, November 21, 2011
It's a time of family and feasts – and gratitude.
| Tags: Huntington's, mother, father, daughter, wife, warrior, diagnosis, testing positive, symptoms, tested negative, caregiver, scientist, pharmaceutical, gene-positive, treatments, cure
Monday, October 3, 2011
We need informed dialogue.
| Tags: CHDI, Hereditary Disease Foundation, Huntington's Disease Drug Works, Huntington's, brain, treatment, cure, HD-positive, clinical trial, observational trial, Guthrie, Congress, gene, genetic, genetic testing, care, clinic, advocacy, support group, research, genetic counseling, caregiver, nursing home, Nancy Wexler, Alice Wexler, at-risk, Venezuela, genetic test, genetic, drug, LaVonne Goodman, HDSA Person of the Year, pharmaceutical, scientist, Isis Pharmaceuticals
Wednesday, September 21, 2011
I'm in the gray zone between my genetic test and HD onset.
| Tags: Huntington's, symptoms, gene-positive, onset, mother, genetic test, gene, psychiatric, chorea, scientist, research, premanifest, brain, psychotherapist, depression, anxiety, Huntington's Disease Drug Works, creatine, coenzyme Q-10, trehalose, omega-3, blueberry, wife, daughter, spirituality, modifier gene, father, treatment, cure
Wednesday, August 24, 2011
The stakes are enormous: treatments – or another generation lost to HD.
| Tags: Huntington's, gene-positive, clinical trial, trial, caregiver, Center of Excellence, research, treatment, cure, scientist, at risk, Alzheimer's, Parkinson's, wheelchair, mother, sister, Lundbeck, tetrabenazine, Xenazine, observational study, LaVonne Goodman, Keith Elliston, Jan Nolta, Huntington's Disease Drug Works, symptoms, symptomatic, stigma, denial, closet, testing, tested, genetic testing, Enroll-HD, chorea, shaking, FDA, CHDI, awareness, stem cell, mesenchymal stem cell, brain, neuron
Thursday, July 28, 2011
We must all chip in to help find treatments.
| Tags: Huntington's, scientist, gene, Charles Sabine, clinical trial, gene-positive, symptoms, symptomatic, at-risk, CHDI, trial, untested, denial, sister, daughter, activism, activist, love, researcher, FDA, drug, motor, cognitive, psychiatric, brain, cocktail, Xenazine, tetrabenazine, Lundbeck, Alnylam, RNA interference, asymptomatic, presymptomatic, mother, Enroll-HD
Tuesday, June 21, 2011
It's time to brainstorm on improving our cause.
| Tags: Huntington's, mother, wife, daughter, gene-positive, research, Brazil, scientist, cure, treatment, Alnylam, symptoms, onset, caregiving, solidarity
Sunday, February 27, 2011
Revealing my gene-positive status has been an intense experience.
| Tags: activism, research, scientist, gene-positive, HD-positive, discrimination, insurance, pre-existing condition, closet, stigma, Huntington's, mother, daughter, wife, trial, Charles Sabine, coming out, brain, neuron, symptoms, cure, treatments, coping, Alnylam, advocacy, genetic, RNA interference, workaholic
Monday, February 21, 2011
'I can see that we're getting to the final stretch.'
| Tags: Huntington's, treatment, cure, CHDI, Robert Pacifici, Michael Hayden, huntingtin, genetic, Isis, Alnylam, brain, gene, synaptic dysfunction, synapse, chorea, symptoms, gene-positive, coenzyme Q-10, creatine, trehalose, mitochondria, BDNF, depression, receptor, Rhes, research, science, scientist, drug hunter, hope
Friday, November 5, 2010
At-risk and HD-positive people need and deserve a break.
| Tags: Huntington's, at-risk, tested, asymptomatic, symptoms, HD-positive, gene-positive, HSG, Martha Nance, Leslie Thompson, HDSA-San Diego, HDSA, Vertex, exercise, mother, daughter, father, Charles Sabine, sleep, stem-cell, stem cell, CHDI, scientist
Sunday, February 14, 2010
Cure HD initiative keeps its team thinking hard.
| Tags: cure, Huntington's, disease, scientist, science, CHDI, HDSA-San Diego, Steven Seagle, It's a Bird, symptoms, mother, genetic mirror, genetic, premanifest, gene-positive, MRI, gene, oligonucleotide, RNA interference, drug, Robi Blumenstein, Michael Hayden
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