Monday, June 11, 2012
Our organization's meaning: Hope, Determination, Solidarity, Awareness.
| Tags: Huntington's, Brazil, Person of the Year, symptoms, mother, daughter, sister, HD closet, suicide, onset, gene-positive, Guthrie, Social Security, juvenile HD, Louise Vetter, HD Parity Act, mutation, genetic, tested positive, discrimination, awareness, advocacy, solidarity, neurodegenerative
Sunday, December 11, 2011
Timothy's brain was donated for research.
| Tags: Huntington's, brain, gene, abortion, mother, research, husband, wife, daughter, son, tested positive, gene-positive, activist, tested negative, pregnancy, juvenile Huntington's, symptoms, love, PGD, CAG repeats, geneticist, onset, protein, DNA, cure, treatments, Alzheimer's, Parkinson's, science, scientist, HD closet, closet, genetic, solidarity
Tuesday, June 21, 2011
It's time to brainstorm on improving our cause.
| Tags: Huntington's, mother, wife, daughter, gene-positive, research, Brazil, scientist, cure, treatment, Alnylam, symptoms, onset, caregiving, solidarity
Wednesday, May 11, 2011
It's time to conquer HD!
| Tags: Huntington's, Hereditary Disease Foundation, Huntington's Disease Drug Works, CHDI, cure, symptoms, mother, daughter, wife, father, solidarity, diagnosis, gene-positive, HD Buzz, HDDW, LaVonne Goodman, genetic, brain, stem cell, Jan Nolta, California, Alzheimer's, Parkinson's, Lou Gehrig's, mesenchymal stem cell, neuron, RNA, Isis, Alnylam, Institute for Regenerative Cures, Lundbeck, Xenazine, tetrabenazine, FDA, chorea, PGD, at-risk, tested negative, psychiatric, behavioral, depression, psychotic, caregiver, caregiving, medication, cope, huntingtin, gene, protein, huntingtin suppression, advocacy, activism
Monday, March 14, 2011
Memories, doubts, and the aftermath of exiting the HD closet.
| Tags: Huntington's, solidarity, testing, genetic testing, wife, mother, daughter, tested positive, gene-positive, psychologist, diagnosis, symptoms, tested negative, orphan disease, discrimination, CHDI, Yale, social justice, neurological, activism, activist, closet, Alnylam, treatment, cure, research, RNA interference
Wednesday, September 23, 2009
In the fight against HD, we know how much we depend on our supporters.
| Tags: brain, disorder, Huntington's, disease, mother, daughter, at risk, symptoms, HDSA, supporters, solidarity, stigma, advocate, stem cell, disability, treatment, cure
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