Tuesday, August 21, 2012
Throwing long, gaining perspective.
| Tags: Huntington's, mother, symptoms, onset, brain, chorea, activist, advocacy, awareness, genetic, discrimination, HD closet, Alice Wexler, orphan, Lou Gehrig's, neurological, caregiving, healthcare, California, daughter, stem-cell, Social Security, Center of Excellence, Brazil, activism, psychiatric, stress, science, father, biotechnological, mind, drug
Monday, January 23, 2012
Scientists receive millions for the search for treatments.
| Tags: California, CIRM, stem-cell, stem cell, research, advocate, advocacy, treatments, cure, Obama, Alzheimer's, Huntington's, activist, Jan Nolta, Leslie Thompson, clinical trial, genetic, gene, BDNF, mesenchymal stem cell, brain, PGD, medium spiny neuron, symptoms
Saturday, July 9, 2011
The honor is for the battle we all fight.
| Tags: Huntington's, HDSA Person of the Year, Louise Vetter, stem-cell, gene-positive, biotech, caregiver, Katie Moser, stigma, neurological, awareness, clinical trial, advocacy, cure, symptomatic
Saturday, May 28, 2011
Please call your reps and senators on national call-in day, Tuesday, May 31!
| Tags: Huntington's, Parity Act, brain, symptoms, caregiver, caregiving, warrior, mother, father, Social Security, Medicare, nursing home, Medicaid, supplements, tested positive, meditation, exercise, daughter, juvenile Huntington's, discrimination, Medi-Cal, stem-cell, chorea, behavioral, disabled, wheelchair, disability, mutant, Louise Vetter
Friday, November 5, 2010
At-risk and HD-positive people need and deserve a break.
| Tags: Huntington's, at-risk, tested, asymptomatic, symptoms, HD-positive, gene-positive, HSG, Martha Nance, Leslie Thompson, HDSA-San Diego, HDSA, Vertex, exercise, mother, daughter, father, Charles Sabine, sleep, stem-cell, stem cell, CHDI, scientist
Tuesday, October 13, 2009
Suddenly it hit me: I have become a very different person because of my gene-positive status.
| Tags: Huntington's disease, Huntington's, gene-positive, tested positive, HDSA-San Diego, daughter, mother, father, wife, symptoms, fundraising, stem-cell, research, BDNF, patient, success, disease, advocacy, cure
Sunday, August 2, 2009
I have a chance to play a part in the historic effort to halt HD.
| Tags: huntingtin, Huntington's disease, genetic, tested positive, mother, daughter, symptoms, depression, mood swings, negative, wheelchair, defect, blessing, onset, modifier gene, diet, exercise, stress, psychotherapy, supplements, Huntington's Disease Drug Works, HDSA, trehalose, coenzyme Q-10, omega-3, blueberry, creatine, love, activism, blog, morale, support group, leadership, stem-cell, advocacy, disease
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