Wednesday, September 21, 2011
I'm in the gray zone between my genetic test and HD onset.
| Tags: Huntington's, symptoms, gene-positive, onset, mother, genetic test, gene, psychiatric, chorea, scientist, research, premanifest, brain, psychotherapist, depression, anxiety, Huntington's Disease Drug Works, creatine, coenzyme Q-10, trehalose, omega-3, blueberry, wife, daughter, spirituality, modifier gene, father, treatment, cure
Monday, April 25, 2011
There's no secret ingredient or spectacular formula for success.
| Tags: activist, activism, Huntington's, advocacy, advocate, awareness, wife, daughter, support group, symptoms, Parity Act, Edgemoor, cure, care, caregiving, brain, mother, Alzheimer's, Parkinson's, psychiatric, tested positive, genetic, disability, Huntington's Disease Drug Works, supplement, coenzyme Q-10, trehalose, Omega-3, genetic mirror, gene-positive
Monday, February 21, 2011
'I can see that we're getting to the final stretch.'
| Tags: Huntington's, treatment, cure, CHDI, Robert Pacifici, Michael Hayden, huntingtin, genetic, Isis, Alnylam, brain, gene, synaptic dysfunction, synapse, chorea, symptoms, gene-positive, coenzyme Q-10, creatine, trehalose, mitochondria, BDNF, depression, receptor, Rhes, research, science, scientist, drug hunter, hope
Friday, December 24, 2010
I remained symptom-free in 2010.
| Tags: Huntington's, clinic, tested positive, mother, symptoms, depression, mood, chorea, Center of Excellence, cognitive, test, testing, gene-positive, death, Huntington's Disease Drug Works, trehalose, coenzyme Q-10, omega-3, blueberry, creatine, Brazil, anxiety, faith, spirituality, psychotherapy, hope, at-risk, diagnosis, genetic, genetic testing
Sunday, August 2, 2009
I have a chance to play a part in the historic effort to halt HD.
| Tags: huntingtin, Huntington's disease, genetic, tested positive, mother, daughter, symptoms, depression, mood swings, negative, wheelchair, defect, blessing, onset, modifier gene, diet, exercise, stress, psychotherapy, supplements, Huntington's Disease Drug Works, HDSA, trehalose, coenzyme Q-10, omega-3, blueberry, creatine, love, activism, blog, morale, support group, leadership, stem-cell, advocacy, disease
Wednesday, July 15, 2009
Everybody can help with vital Huntington's research.
| Tags: Huntington's disease, Huntington's, genetic, tested positive, brain, symptoms, suicie, activist, HDSA-San Diego, HDSA, experiments, clinical trials, scientists, guinea pig, gene-positive, at-risk, affected, drugs, Martha Nance, LaVonne Goodman, Huntington's Disease Drug Works, HDDW, mother, defect, MRI, National Research Roster, trehalose, coenzyme Q-10, omega, fish oil, blueberry, creatine, neuropsychological, cocktail, motor control, stability, A Beautiful Mind, balance, asymptomatic, treatments, Center of Excellence
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