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Links
- Southern Caregiver Resource Center
Located in San Diego, the SCRC co-sponsors our monthly support group for caregivers, at-risk individuals, and HD patients and provides services to caregivers and their families.
- Huntington's Disease Clinical Research Program at UC San Diego
The HDCRP at the University of California, San Diego is dedicated to serving the needs of those affected by HD. It is a HDSA Center of Excellence.
- HDlighthouse.org
One of the most comprehensive and up-to-date sites on Huntington's disease and research. Includes numerous tips on how to fight the disease.
- HDSA activist Jean Miller's website
Learn more about: * HD State By State Resources (HD Support Information) * Juvenile HD & Other Information * Understanding Behavior * Kids-Young Adults HD * Speaking Out~Living With HD * HD Helpful Forms * More!
- Huntington's Disease Advocacy Center
Articles, columns, and other helpful information on Huntington's disease produced by and for families facing HD. Includes chat rooms and a message board and a useful introduction to Huntington's.
- Huntington's Disease Drug Works
A "treatment now" program that facilitates a medically supervised and personal best treatment plan for people with HD.
- Huntington's Outreach Project for Education at Stanford University
A team of Stanford faculty and students provides a public resource on HD research to complement the Huntington's Disease Advocacy Center.
- HD Blog
Huntington's disease news and commentary from Dave, who created the first weblog dedicated to the subject. Regular commentary and research updates.
- StemCellAction.org: Portraits of Hope
A grassroots, volunteer group of patients and their families and friends who believe that stem cell research could save the lives of people suffering from "hopeless" diseases.
- Grief Recovery: The Action Program for Moving Beyond Loss
Assistance for those dealing with death and other profound losses.
- Family Caregiver Alliance
A comprehensive site providing information on caregiving. Founded in 1977, the Family Caregiver Alliance assists families and friends providing loved ones with long-term care.
- California Advocates for Nursing Home Reform
This site is a good starting point for finding a nursing home in your area.
- National Research Roster for Huntington's Disease Patients and Families
The HD Roster is a unique nationwide information resource dedicated to facilitating scientific research on Huntington disease. The goal is to link patients and families with scientists.
- Heather's Huntington's Disease Page
Heather, a former nurse, is 24 and experiencing early onset HD. Her site has a blog, caregiving tips, ways to fight brain fog, myths, and more.
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