Advocacy

Advocacy involves active and public support for the Huntington’s disease community at the local, state, and federal levels. HDSA-San Diego seeks to educate political and community leaders about Huntington’s disease and to secure legislation and public funding in order to improve the situation of HD families and to support research towards treatments and a cure.

Historical Vote for HD Stem Cell Research:CIRM Awards$18.9 million to UC Davis
Thursday, August 9, 2012
A unanimous vote made by CIRM’s ICOC is making possible the first Huntington’s disease clinical trial using adult stem cells.
Advocacy pays off: HD stem-cell research advances in California
Monday, January 23, 2012
Scientists receive millions for the search for treatments.
San Diego advocates speak on Clear Channel broadcast
Wednesday, June 8, 2011
Impact of HD discussed in 30-minute program.
Senator Gillibrand introduces HD disability act
Thursday, March 24, 2011
Bill would bring benefits faster to HD patients.
HDSA rallies advocates to push for passage of benefits bill
Saturday, March 6, 2010
Nearly 100 House representatives have co-signed legislation.
HD benefits bill reaches crucial mark of 50 co-sponsors
Thursday, October 29, 2009
Legislation would bring faster assistance to HD patients.
HD social security bill gains supporters
Sunday, August 9, 2009
Twenty-six congressional representatives are co-sponsors.
Becoming an advocate is as easy as making a phone call
Sunday, August 9, 2009
Becky Grossklaus contacted people she knew to get a congressman to help HD families.
HD benefits bill introduced by San Diego representatives
Thursday, May 28, 2009
Bill is discussed on the floor of Congress and the media.
Stem cells: the dawn of a new era for Huntington's research
Friday, December 14, 2007
Historic presentation at California stem-cell institute points the way to treatments.